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NYS Siblings Needs Assessment

EDI Home Community Inclusion NYS Siblings Needs Assessment

NYS Siblings Needs Assessment


Adult siblings of individuals with developmental disabilities determine their own pathways in relation to balancing their adult lives and interactions with their sibling. Some adult siblings find they need information, resources or assistance.  This New York State Developmental Disabilities Planning Council (DDPC) sponsored project will survey (1) the current level of supports and services offered to siblings in NYS by the OPWDD-funded service delivery system and (2) the current state and needs of adult siblings regarding  knowledge, training needs and care capacity for their sibling with developmental disabilities.

At the conclusion of these studies a report addressing identified regional sibling needs with recommendations and a logic model for implementation will be created.

Learn more about NYS Siblings by watching the video Seeking Sibling Insight.

Executive Summary and Recommendations

Executive Summary and Recommendations from the Sibling Survey project
Download (337 KB)

For more information regarding the project please contact Nancy Hinkley(nah36@cornell.,edu).

Project Activities

NYS Service Delivery System Suvery:

  • An online survey of OPWDD - related provider agencies and their current capacity related to siblings.

NYS Sibling Needs Assessment Survey:

  • An outreach effort and online survey of siblings of NYS residents with developmental disabilities.
  • A project report and recommendations, including a logic model for future implementation consideration, will be created at the conclusion of the study (late spring 2013).

In the SpotLight - What Brothers, Sisters Need

About the Project

Funding Agency

New York State Developmental Disabilities Planning Council

Principal Investigator

Nancy A. Edminster Hinkley

Collaborating Partners

The Advocacy Center, Rochester,NY
    Outreach Coordinator: Carrie Burkin
    Phone: 585-546-1700


Contact Us

Nancy Hinkley
201 Dolgen Hall
Ithaca, NY 14853
Phone: 607-255-1109

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